Quick Review: The Immortal Life of Henrietta Lack

After a few people mentioned a particular New York Times bestseller to me recently, I decided to read The Immortal Life of Henrietta Lack. While the story itself was interesting, there is a lot of material here that could be used in research methods and ethics classes. A few thoughts about the book:

1. The story is split into two narratives. One is about both the progress science has made with a Lack’s cells but also the struggle of her family to understand what actually has been done with her cells. The story of scientific progress is unmistakable: we have come a long way in identifying and curing some diseases in the last sixty years. (This narrative reminded me of the book The Emperor of All Maladies.)

2. The second narrative is about the personal side of scientific research and how patients and relatives interpret what is going on. The author initially finds that the Lacks know very little about how their sister or mother’s cells have been used. These problems are compounded by race, class, and educational differences between the Lacks and the doctors utilizing Henrietta’s cells. In my opinion, this aspect is understated in this book. At the least, this is a reminder about how inequality can affect health care. But I think this personal narrative is the best part of the book. When I talk in class about the reasons for Institutional Review Boards, informed consent, and ethics, students often wonder how much social science research can really harm people. As this book discusses, there are some moments in relatively recent history that we would agree were atrocious: Nazi experiments, the Tuskegee experiments, experiments in Guatemala, and so on. Going beyond those egregious cases, this book illustrates the kind of mental and social harm that can result from research even if using Henrietta’s cells never physically harmed the Lacks. I’m thinking about using some sections of this narrative in class to illustrate what could happen; even if new research appears to be safe, we have to make sure we are protecting our research subjects.

3. This book reminded me of the occasional paternalistic side of the medical field. This book seems to suggest this isn’t just an artifact of the 1950s or a racial division; doctors appear slow in addressing concerns some people might have about the use of human tissue in research. I realize that there is a lot at stake here: the afterward of the book makes clear how difficult it would be to regulate this all and how this might severely limit needed medical research. At the same time, doctors and other medical professionals could go further in explaining the processes and the possible outcomes to patients. Perhaps this is why the MCAT is moving toward involving more sociology and psychology.

4. There is room here to contrast the discussions about using body tissue for research and online privacy. In both cases, a person is giving up something personal. Are people more disturbed by their tissue being used or their personal information being used and sold online?

All in all, this book discusses both scientific breakthroughs, how patients can be hurt by the system, and a number of ethical issues that have yet to be resolved.

Urban Decay cosmetics

As an urban sociologist, I am always interested to examine popular depictions of cities and suburbs. So I was intrigued when I found this advertisement for Urban Decay in the Sunday newspaper:

According to the ad, this line of cosmetics includes products like “Sin Eyeshadow Primer Potion” and “All Nighter Makeup Setting Spray.”

Here is the story of Urban Decay:

Our story opens 15 years ago, when pink, red, and beige enslaved the prestige beauty market. Heaven forbid you wanted purple or green nails, because you’d either have to whip out a marker, or risk life and limb with that back alley drugstore junk. Flying in the face of this monopoly, Sandy Lerner (cofounder of Cisco Systems) made a bold decision: if the cosmetic industry’s “big boys” couldn’t satisfy her alternative makeup tastes, she’d satisfy them herself.

Fatefully, Sandy’s business manager, David Soward, introduced her to fellow visionary Wende Zomnir. A creative businesswoman (and makeup addict almost since birth), Wende also recognized the color void and determined a shake-up was in order. Over high tea, the two forged a pact that led to renegade nail polish mixing sessions in Wende’s Laguna Beach bungalow. Sandy, David and Wende unleashed Urban Decay in January of 1996 with a line of 10 lipsticks and 12 nail enamels. Inspired by seedier facets of the urban landscape, they bore groundbreaking names like Roach, Smog, Rust, Oil Slick and Acid Rain. The first magazine ad queried “Does Pink Make You Puke?,” fueling the revolution as cosmetics industry executives scrambled to keep up…

Our ever-expanding global presence proves what Wende and Sandy always knew – makeup wearers everywhere crave alternatives, hence our longevity well past the death of 90s grunge. In the US, hundreds of UD products now fill purple shelves at Sephora, Ulta and Macy’s, as well as the virtual pages of Beauty.com. Growing numbers of retailers in Canada, the UK, France, Italy, Spain, Singapore and the Middle East stock our line, too. And although UD fans around the world might approach our products in wildly different ways, we’ve noticed they share an independent spirit that unites them…

We’ve now become the largest independently owned color cosmetic company in the United States. Our moms are proud. “Urban Decay” is no longer such a crazy name for a makeup company. And young women today have never known a world where they couldn’t get purple nail polish over the counter. Mission accomplished.

What is interesting to me is the commodification of a particular location and style. The name brings back images from the mid-twentieth century as many Americans fled large cities for the cleaner, greener, and safer suburbs. Governments responded by clearing urban blight and instituting programs of urban renewal. Today, urban decay is more fashionable. It seems gritty and authentic – see the passages above about the banality of pink and how darker colors subvert these ideas. It brings to mind ideas of adventure, being a renegade, standing out from the crowd. Perhaps it is tied to ideas of gentrification and finding the exciting yet improving parts of cities. Think of places like Times Square that just a few decades ago were seedy locations and even with the glitz and glamor of today still retain some of this urban excitement that simply can’t be replicated in the shopping mall or on Facebook. And, of course, you can have all of these ideas if you are simply willing to spend a little money on a line of cosmetics.

Is there a suburban alternative to this, something like Suburban Passion or Desperate Suburbs?

Ruminating on the American parking lot

Here is part of a review of a new book that discusses better ways to design large-scale parking lots:

Mr. Ben-Joseph does offer some parking-lot success stories, few that there are. He introduces us to the Herman Miller factory in Cherokee County, Ga., whose segmented, 550-car lot is sympathetically integrated into the surrounding woodscape. He also approvingly notes the canopied car plaza in front of the Dia:Beacon Museum in Beacon, N.Y. (a collaboration between American artist Robert Irwin and the architecture firm OpenOffice), where the angled planters separating the parking spaces point the way to the museum entrance. Renzo Piano, redesigning the old Fiat Lingotto factory in Turin, Italy, took a similar approach, creating dense and splendid colonnades of trees…

Mr. Ben-Joseph is also guilty of sociological overreach. “Parking lots are a central part of our social and cultural life,” he writes, calling them “a modern-day common.” Wait, what? They are? Yes, teenagers gather in parking lots for one rite of adolescence or another: fighting, racing, dancing. True, community farmers markets spring up over the weekend in business and municipal parking lots; tailgating is a ritualized feasting before sporting events; RV drivers form impromptu villages in Wal-Mart parking lots, a practice known as “boondocking.”

But these interactions happen despite the forbidding nature of open parking lots, not because of them. I find parking lots to be intensely anti-social. I do not engage with strangers on my way to or from the car, and because these tracts are typically shelterless, there is no architectural cue as to where to congregate even if you wanted to. One can’t let go of a child’s hand in a parking lot for even a second. If you’re in a car, a parking lot is an obstacle course to negotiate. If you’re on foot, it’s a place to escape unscathed.

Surface parking lots don’t have to be the minimalist slabs of nowhere-ness we’ve grown accustomed to, Mr. Ben-Joseph suggests. Maybe. And yet there are few signs that this aspect of our infrastructure will get much better anytime soon. For now, I was glad to reach my car and drive away.

I think you could make a case that parking lots really do matter beyond what kind of social activity takes place in them. Thinking more broadly, parking lots represent the American love affair with the car and development based around driving. The zoning laws about the required number of parking spots suggest that one of the worst things we can imagine in everyday life is the lack of an easily available parking space. Shopping malls and big box stores and fast food restaurants are dependent on these giant lots. In cities, parking lots are often profitable holding operations until the land is profitable enough to justify a large development. Overall, the big parking lot is emblematic of a whole lifestyle built around cars and trucks that took over America starting in the 1920s.

The church should respond to Going Solo

In Going Solo (a summary of the argument here), Eric Klinenberg documents a growing trend in American social life: more and more people are living alone. As I read this book and thought through the idea that this is an unusual trend in human history, I was somewhat surprised that there was very little about a religious approach to this issue. Klinenberg mentions at a few places how a few “singletons” are sustained by their faith and how a few religious organizations are serving elderly singletons but there is no bigger mention of how religious faiths address this issue. Although I don’t study this area, I believe this is a golden opportunity for evangelicals and others in the church to respond to this growing trend. Here are a few thoughts about the issue at hand and how churches can begin to tackle the issue.

Many churches, particularly the average evangelical church, are built around the family. Many programs are geared toward kids and families. Sermons are much more likely to be about family relationships that about living alone. In my own experience, you often don’t “fit” in these churches unless you are married and have kids. Even being married is not enough: I’ve felt this in multiple churches, that you aren’t fully a participant unless you have children who are involved in kid’s ministries. If I didn’t volunteer to serve or seek out relationships, simply being part of a married couple isn’t going to get me far. While we have been invited to some events and groups, we have rarely been invited to the house of a couple who has kids. (I am more than willing to admit that this may have more to do with me than my family status.)

This is not just a feature of the church. As Klinenberg points out, the societal expectation is that people will get married and have children. Not following that course leads to questions and sometimes bewilderment. I’ve heard the idea from others that having children allows one to more easily make connections with other adults. For example, having kids in school or in a neighborhood means that parents will inevitably meet other parents as their children interact. Without children (or perhaps a pet?), it can be difficult to strike up conversations even with people we see on a regular basis in the neighborhood, in public places, or at church.

I’ve thought at times that some churches verge on placing families higher than God. Which one is mentioned more? What are the subtle and not-so-subtle messages broadcast to people who attend? I wonder how much of this is driven by a perceived demographic need, a feeling among evangelicals that the best way to continue our churches and our faith is to raise children in this faith. A great example of this is a supposed statistic sociologist Christian Smith pointed out a few years ago: “only 4 percent of today’s teenagers would be evangelical believers by the time they became adults.” As Smith notes, this statistic is not true but it fits a mindset where there is a continuous battle between evangelicals and the rest of the world. One of the best ways to fight back is to have children who will continue the fight. Of course, Smith’s later work in books like Souls In Transition suggests that parents do indeed matter for a lasting religiosity.

While supporting marriage and families is a good thing (though I am reminded of sociologist Mark Regnerus’ arguments several years ago in an article titled “The Case for Early Marriage“), this leaves a lot of people out: younger adults, the widowed, the divorced, the separated, those who haven’t married. A common message is that once you leave these categories and get married, you are “normal” in the church’s eyes. Otherwise, you are more on the margin.

One possible solution to some of these issues is to have more intergenerational classes and activities. Churches often group people by life stages, often literally separating groups from the main activities from the church (like in youth groups). I’ve never been a fan of this: both personally and as a sociologist, I see a lot of value in interacting with and learning from those who have more experience and wisdom than I do. There is much to be gained by building relationships with those who are experiencing similar issues related to age but it also emphasizes certain landmarks. For example, singles’ ministries or small groups based on childless couples can be odd in that the unstated goal is to leave these groups. Why not treat people as whole people who can learn from other whole people rather than pushing ourselves into easily defined and sorted groups? Simply worshiping together in a large service doesn’t lead to deeper relationships in the way that consistent intergenerational interaction can.

Another possible solution is to broaden the focus away from nuclear families and to a more expansive definition of “families” and “neighbors.” This does not have to look like the final scene from the movie About A Boy where the lonely teenager Marcus and the lonely middle-aged man Will have found a group of people they like and that like them who they now define as their “family.” Rather, this could and should include people we wouldn’t immediately gravitate to, people who aren’t necessarily easy to make initial connections with. We can be reminded that the suburban nuclear family that many churches are built around is a relatively recent invention in human history. The Biblical characters we uphold in church would have seen themselves as part of larger families, clans, and tribes. As historian Robert Fishman points out in Bourgeois Utopias, William Wilberforce and friends, renowned persons of faith, contributed to this in the late 1700s by moving their families to one of the first Western suburbs, Clapham outside of London, in order to preserve their wives and children from the evils of the city (much more could be said about this topic). Retreating to a suburban family life with limited contact with the world may limit some dangers but it might also introduce some others.

Third, this trend presents a chance for the church to push for and truly live out the ideals of “community, ” a word oft discussed in Christian circles but much harder to put into practice. What does this really look like? How many people are really striving for this? Or is it something that tends to come up in times of trouble? Even further, Klinenberg argues that behind the trend of living alone are American cultural values are self-reliance and individualism. Neither of these are Christian virtues and yet we Americans need to be reminded, as one of my former pastors was fond of saying, “there are no solo Christians.” This broader Christian community should care for all, just as the sociologist Rodney Stark argues the early Christians effectively did. Sure, this is an uphill battle in a world of many single-family homes, cars, long work hours, and growing opposition to organized religion but it is a battle worth fighting.

In sum, this is an opportunity for Christians to uphold values of marriage and family while also addressing the trends of American social life toward singleness. It will not be enough for churches to argue that people should simply get married and then support those people. In dealing with issues like loneliness and searching for meaning that Klinenberg suggests are common along those living alone (and frankly, most people), the church should be leading the way. The church can be a place where close relationships with others are created and nurtured. The church can challenge ideas about self-reliance and independence, ideas about having to be tough to face the world as solitary people. If there is any place where the single and married, young and old, people of different classes, races, and ages should be able to come together, it should be in the places that claim that “God so loved the world” and whose followers are called to “love their neighbors as themselves.”

Sociologist: social media fanned the flames of fire over pink slime

A sociologist explains how social media helped build a furor over “pink slime”:

Why the outrage around BPI? The Web petition? The TV coverage?

“That’s the wrong way to think about this,” said Matthew Salganik, an assistant professor of sociology at Princeton University. “Imagine a forest fire. No one thinks, ‘Which lightning strike did it?’” More telling are the scant rainfall and hot weather that set the stage for a blaze, he said.

The meat industry has been taking heat in books, films, and news stories for years. Add a catchy phrase, schoolchildren, and the prospect that some icky-sounding stuff is in Junior’s Whopper, and you have a PR disaster, he said.

“Social media is something that adds oxygen to the environment,” Salganik said. “It increases the chance that a small spark will turn into a big fire.”

This is an explanation that seems to be gaining steam when talking about how social media contributes to social change: social media can be a catalyst or an accelerant for existing situations and movements. Remember, not all social media movements, campaigns, or memes lead to large-scale change. However, given the right circumstances, social media can help draw a lot of attention to things like warlords in Central Africa or “pink slime” or dictators in the Middle East.

The Internet is not an information superhighway or global village; rather, a “drab cul-de-sac”

In an interesting article titled “Is Facebook Making Us Lonely?”, author Stephen Marche makes his point by comparing the Internet to suburbs:

In a world consumed by ever more novel modes of socializing, we have less and less actual society. We live in an accelerating contradiction: the more connected we become, the lonelier we are. We were promised a global village; instead we inhabit the drab cul-de-sacs and endless freeways of a vast suburb of information.

Marche is discussing the disillusion associated with the Internet: a good number of people thought it would provide unprecedented access to information, more global connections, and stronger democracies and civil societies. Instead, Marche argues that it is like the suburbs. They both provide the illusion of a “good life” but with little depth behind the happy facade of McMansions or Facebook. Marche should finish the metaphor: perhaps we need an online way of connecting that is more equivalent to an urban neighborhood, perhaps the kind idealized by Jane Jacobs.

I wonder if Marche would be willing to work with the idea that the Internet may not be the best or all it could be but it is a necessary adaptation for the modern world. This is similar to an argument I’ve made before about suburbs: I think many Americans know that they aren’t all they are said (or sold) to be (see a recent survey where a majority of Americans say they would move right now if they could). However, the suburbs beat the alternatives of small town life (too confining, not enough independence, not enough amenities or jobs) or city living (perceived as being too dangerous and anonymous). Similarly, it would be truly hard to live these days without using the Internet or even not be a member of Facebook as these are becoming (and have become for many) the basic ways of finding out information, buying goods, and yes, “connecting” with others.

Uptick in recent years in American children born to unwed parents

As more Americans are living alone or delaying or rejecting marriage, “more children [are] born to unmarried parents.”

The percentage of first births to women living with a male partner jumped from 12% in 2002 to 22% in 2006-10 — an 83% increase. The percentage of cohabiting new fathers rose from 18% to 25%. The analysis, by the National Center for Health Statistics, is based on data collected from 2006 to 2010.

“We were a little surprised in such a short time period to see these increases,” says demographer Gladys Martinez, lead author of the report, based on face-to-face interviews with 12,279 women and 10,403 men ages 15-44.

The percentage of first births to cohabiting women tripled from 9% in 1985 to 27% for births from 2003 to 2010.

Karen Benjamin Guzzo, a sociologist at Bowling Green State University in Bowling Green, Ohio, who studies cohabitation and fertility, says she thinks the big jump since 2002 is likely because of the recession, which was at its height from late 2007 to 2009, right in the middle of the federal data collection.

“I think it’s economic shock,” she says. “Marriage is an achievement that you enter into when you’re ready. But in the meantime, life happens. You form relationships. You have sex. You get pregnant. In a perfect world, they would prefer to be married, but where the economy is now, they’re not going to be able to get married, and they don’t want to wait to have kids.”…

Sociologist Kelly Musick of Cornell University in Ithaca, N.Y., who studies cohabiting couples with children, says she’s noticed women with more education starting to have children outside of marriage. She says cohabiting used to be more common among women who didn’t graduate from high school but it’s becoming more common for those with a high school degree or some college…

If sociologist Benjamin Guzzo is correct, does that mean that a good economy down the road (whenever that might be) would reverse this trend? I also wonder how this fits with sociologist Kelly Musick’s suggestion that cohabitation is spreading across class lines. How does this line up with recent arguments that marriage may be becoming a middle- or upper-class luxury?

Guzzo’s argument that marriage happens when two people are “ready” is also interesting. This fits with an argument that expectations for marriage partners are very high. So people don’t want to marry because they aren’t ready, economically or perhaps psychologically, but they do feel ready to have children in these situations and having a child is less tethered to being married.

Some of this seems to be happening quite rapidly and we just starting to to track it think about what it means.

“Being a sports fan can be good for your emotional, psychological and social health”

Perhaps I simply like the idea that watching more sports could be a good thing but research suggests there are positive health benefits to being a sports fan:

Indeed, the stereotype that sports fans are overweight, beer-drinking couch potatoes is inaccurate, said Daniel L. Wann, a psychology professor at Murray State University in Kentucky and the author of “Sports Fans: The Psychology and Social Impact of Spectators.”

“Sports fans are quite active physically, politically and socially,” he said…

Fans who identify with a local team have higher self-esteem, are less lonely and are no more aggressive as a group than nonsports fans, according to Wann.

“Pretty much any way you look at it, the more you identify with a local team, the more psychologically healthy you tend to be,” said Wann, who has studied sports fans for 25 years. “You have a built-in connection to others in your environment. If you live in San Francisco and you are a Giants fan, it’s pretty easy to be connected to others.”…

Wann said fandom unites people at a sociological level.

“We as a species have a strong need to belong and a need to identify with something greater than ourselves. Sports is the way some people do that,” he said.

Read on for more details (as well as some possible negative effects).

If there are some benefits to being a fan, we could then ask why negative stereotypes about sports fans exist or are so persistent. Are these ideas perpetuated primarily by non-sports fans – how many Americans would say they are really sports fans? Are they related to ideas about boorish masculinity? Are there too many incidents of sports fans doing stupid things like rioting or acting childish after a star leaves town for another team?

Additionally, this article hints at this but doesn’t fully address the social benefits or consequences of sports fandom (the sociological dimension). For example, what about this question: does having a major sports team improve the collective experience in a major city? Can most or even a majority of a community truly bond and with long-lasting effects over a sports team or a sporting event?

I also wonder if some would argue there is an opportunity cost issue here. If you pay enough attention to sports, you could experience some of these benefits. However, there are other activities you could be doing, say interacting with your family (which is not mutually exclusive from watching sports) or helping others, and that you could miss out on. While I enjoy sports, I am afraid to know how many hours I have spent paying attention to them and then thinking what else I could have done with that time.

Movie line: “Victims live in McMansions. You live in a bungalow.”

A review of the new movie Detention includes an interesting  bit of dialogue spoken to a character who has just survived an encounter with a horror movie villain:

Victims live in McMansions. You live in a bungalow.

Since I don’t watch horror films or a lot of ultra-violent movies, I wasn’t aware that victims are often McMansion dwellers. If this is true: is this simply tied to the idea that the privileged/wealthy/popular/snobby types tend to live in such houses (meaning the setting is not the main point of the scene) or is it a larger commentary about consumption and poor-quality yet large tract housing?

Naperville government leads Illinois’ top 20 cities in social media use

Naperville is used to accolades – see this well trumpeted #2 ranking in Money‘s Best Places to Live in 2006. Here is a new measure of excellence: Naperville is #1 in a suburban government’s use of social media.

A University of Illinois at Chicago study ranks the western suburb No. 1 among local government websites in a study of social media use by Illinois’ 20 largest cities.

Researchers from the university’s College of Urban Planning and Public Affairs analyzed the websites using at least 90 criteria to determine how well each provided residents with information and the opportunity to interact with officials. Chicago and Elgin round out the top three…

In addition to its main website, Naperville uses Facebook, Twitter, YouTube, RSS feeds and about two dozen e-newsletters to communicate with residents. It also is looking into starting a mass notification system that Community Relations Manager Nadja Lalvani likened to a “reverse 311.”

“It’s very important for us to be able to communicate effectively and efficiently with residents and other constituents,” Lalvani said. “Social media is very prevalent and another tool to make sure the message is penetrating our audience.”

The UIC study also found increasing use of social media by cities around the country. In 2011, 87 percent of the 75 largest U.S. cities used Twitter, compared with 25 percent in 2009. Likewise, 87 percent used Facebook, compared with 13 percent two years prior.

It doesn’t surprise me that Naperville would lead the way: they seem to have the resources to make this happen as well as the interest in being efficient, taking advantage of new technology (see the ongoing debate over wireless electricity meters – the city’s view and an opposition group), and communicating with people.

I wonder if the study included talking to residents to see if these efforts are reaching them. This is an on-going issue for many communities: the city/village/town claims that they are putting out information while residents suggest they are blindsided at the last minute or aren’t informed at all. I think both sides are often right: many communities have newsletters and websites where information can be found. However, searching out and reading this information does require some effort on the part of residents. Add in the issue that many communities are without local newspapers and it is more difficult to transmit this information broadly. If this plan of attack in Naperville is successful, I imagine more communities will follow their lead.

A second issue could still limit the effectiveness of the social media outreach. I was reminded of this by a talk I heard last week: governments may make information publicly available but they don’t necessarily make the information easily understandable. For example, a community may release some data or an important report but the language and data requires interpretation that the average citizen may be incapable of doing. There is a translation issue here from technical or government speak to what people can understand and then react to. Or a large dataset may be public but it requires knowledge of statistics and specialized software to make some sense of it. Granted, it can be hard to boil down complex issues into newsletter items but it also shouldn’t be the case that newsletters and tweets only cover basic stuff like brush pick-up and meeting times.